Registry Participation in Neuromuscular Disease

Author Department

Medicine

Document Type

Article, Peer-reviewed

Publication Date

12-2016

Abstract

Patient registries are a resource to better study neurologic disease and may facilitate the development of future treatments. Clinicians should become comfortable with the strengths and limitations of patient registries and be able to discuss them with their patients. This article discusses the use of patient registries through the example of registries for patients with neuromuscular disease.

PMID

27922505

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